Is UniteRare free for patients and caregivers?
Yes. Every tool — disease navigation, symptom-based diagnosis assistance, FDA treatment search, clinical trial matching, specialist lookup, and support program finder — is free for patients and caregivers. No login is required to browse.
Can UniteRare diagnose my rare disease?
No. UniteRare is a decision-support platform, not a medical provider. Our diagnosis-assist tool ranks candidate rare diseases against your symptoms and helps you find the right specialists — but only a qualified clinician can make a medical diagnosis.
How many rare diseases does UniteRare cover?
UniteRare covers over 11,000 rare diseases sourced from Orphanet, OMIM, and the FDA's orphan-designation registry. Every disease page links back to its primary authoritative sources so patients and clinicians can verify details.
Who reviews the medical information on UniteRare?
Content is aggregated from primary sources (Orphanet, OMIM, NIH, ClinicalTrials.gov, FDA label data) and verified through an automated QC pipeline against those sources. The full review process is documented in our Editorial Policy. Named clinical advisor bios are added as they join.
Is my health data private?
Yes. UniteRare uses a three-vault architecture — identity data is stored separately from health data and linked only by a random ID. No data is shared with pharmaceutical partners or any third party without your explicit consent. HIPAA-aligned row-level security is enforced at the database layer.
Can UniteRare help me find a specialist for my rare disease?
Yes. We track more than 43,000 verified clinicians and research centers, cross-referenced with ClinicalTrials.gov principal-investigator records and NPPES NPI data. You can search by disease, state, or credentialing signal (NORD centers, trial PIs, publication counts).
Does UniteRare help with insurance appeals?
Yes. The insurance appeal engine generates evidence-based appeal letters citing FDA label data, published clinical guidelines, and applicable state regulations. It is free for patients and is a drafting aid — not a substitute for legal advice.
How do I find a clinical trial for my disease?
Use the clinical trial matcher, which filters ClinicalTrials.gov's full database of 124,000+ trials to those actively recruiting for your disease, age, and location. Every trial links to its ClinicalTrials.gov record for full eligibility criteria.
Is UniteRare a replacement for my doctor?
No. UniteRare provides decision support and navigation — it is a tool that helps you prepare for conversations with your healthcare team, find specialists, and access support programs. Never use UniteRare outputs to make medical decisions without consulting a qualified clinician.
Is UniteRare affiliated with any pharmaceutical company?
No. UniteRare is independent and not owned, sponsored, or directed by any pharmaceutical manufacturer. The platform aggregates patient-support programs — including those offered by drug makers — but editorial and data decisions are made independently.